Editorial
Commentaries
Human-Centered Quality: Reframing Quality Around What Matters to People
Vita Steina and Jason Wolf
Consumer, Customer, or Patient?... It's All About Context
Sven Gierlinger
Personal Narratives
More Than a Buzzword: Why Trauma-Informed Care Needs Widespread Practice
Christine Lee Frost
The Phantom Fifth Chair of Patient Experience
Kathy Saldana
15 October 2021: Living with the Consequences of a Cardiac Event — A Patient Perspective
Bruce H. Knox
Reflections on Factors That Led to a Dehydration Hospitalization: Lived Experience to Inform Systems Change for Nursing Home Residents
Lucas Kandia and Jodi Dunmeyer Stookey
Research
When Decision-Making Styles Do Not Predict Communication Preferences: Rethinking Personalization in Healthcare Experience
Victoria Sze Min Ekstrom
Health Information for Patients and Families: Sources, Data Types, and Tools for Evaluating Accessibility
Preeti Pandey, Richard I. Zraick, and Vinaya Manchaiah
Information Continuity and Experiences of Mental Healthcare: A Conceptual Framework
Timothy Kariotis, Megan Prictor, Kathleen Gray, and Shanton Chang
Exploring the Lived Experiences of Familial Caregivers to Individuals with Prader-Willi Syndrome: The Impact of Caregiver Burden
Louisa Williams and Eden Morley
Parallel Realities: A Narrative Review of Differences Between Patients and their Care Providers
Umair Majid, Hazeema Haq, and Ziyad Yahmad
Challenges of Family Members of Admitted Patients in Relationship with Medical Staff in Kurdistan Region: Cross-Sectional Study
Khalid Khudhur Faris, Zuhair Rushdi Mustafa, Hadi Haji Hussain, Ibrahim Baker Khudida, and Deldar Morad Abdulah
Understanding Patient and Family Experience in Pediatric Hemato-Oncology: A Cross-Sectional Study from Morocco
Boujemaa El Marnissi, Sanae Bouramdane, Moussa Benboubker, Fouad Abbas, Salma Chahid, Jalal Dahmani, Khalid Moubtahij, Kenza Elmkadem, and Sarra Benmiloud
Partnering With Patients: Perspectives of Doctors, Nurses, and Managers Regarding Patient Participation and Feedback in Hospital Settings in Jamaica
Camelia Thompson, Desmalee Holder Nevins, Dawn Walters, Cameal Chin-Bailey, Elon Thompson, Minerva Thame, and Kenneth James
Navigating Emergency Care: Understanding Older Adults' Experiences at the Kingston Health Sciences Centre
Nilany Thanabalasinham, Susan A. Bartels, and Melanie Walker
Unlocking Healthcare Navigation: Key Tasks, Challenges, and Facilitators – A Narrative Review
John Zaki
What Patients Wear Matters: Evidence on Adaptive Hospital Wear, Dignity, and Care Experience
Akhilesh Kumar and Sukhvir Singh
What Matters to Patients When Preparing for a Colonoscopy: A Mixed-Methods Study of Needs and Worry
Louise Bang Grode, Anne Højager Nielsen, Anette Viftrup, Lene Lehmkuhl, Hejdi Gamst-Jensen, Brigitta R Villumsen, Malene Kaas Larsen, and Lone Dragnes Brix
Exploring Lived Experiences to Gain Insight into the Support Needs of People Following Stoma Surgery: A Qualitative Study
Julia Kittscha, Val Wilson, Vida Bliokas, and Greg Fairbrother
Centering torture survivor voices from their experiences
Linda Piwowarczyk, Nandini Agarwal, Kathryn Price, Dmitrii Krivorotko, Arslan Kasimov, Alexandra Brinker, Suzanne Wilson, Salma Amin, and Tithi D. Baul
Beyond Survival: A Qualitative Study of Recovery Barriers and Facilitators Following Emergency Laparotomy
Christie L Martin, Samuel SN Theesfeld, Genevieve B Melton, Elizabeth C Wick, Lindsay L Welton, Samuel E O'Brien, Miranda K Considine, and Jenna L Marquard
Evaluation of Patient and Patient Relative Complaints From the Perspective of Patient Rights
Hilal Kamer, Öznur Karaoğlu, and Oya Sancar
Evaluating Quality of Care Under Nigeria's National Health Insurance Scheme: A Thematic Analysis of Patient Narratives at a Tertiary Care Public Hospital
Nkiru Nwamaka Ezeama, Nene Okunna, and Chukwuemeka Okwudili Ezeama
Implementation of an Integrated PREMs-PROMs Survey in Saudi Arabia: A Cross-Sectional Pilot Study
Muhammad Waseem Shahzad, Adel Al-Shabaan, Ammar Mattar, Eman Alturaiki, Naseem Almulla, Daniel Hage, Dragana Gough, Michael Foytik, and Adam Higman
Patient Reported Experiences of Mental Health and Substance Use in British Columbia Emergency Departments: A Patient-Oriented Exploration of Survey Data
Ross Duncan, Ed Martin, Louise Yeoh, John Grogan, and Riyad B. Abu-Laban
Patient Reported Experiences of Anxiety and Depression Screenings in a Canadian Adult Cystic Fibrosis Clinic
Pat MacDiarmid, April Tanzler, Waqar Younas, Terra Stephenson, Nick Kanaan, and Bradley S. Quon
Patient-Reported Experiences of Communication in Tertiary Otorhinolaryngology Outpatient Care: An Exploratory Cross-Sectional Study
Jasna Mesarić, Iva Lončarić Kelečić, and Maroje Višić
Evaluating Patient Experience and Access to Eye Care for Underserved Populations at Orange County Eye Project Free Clinic: Survey Study
Negin Hadjiabdolhamid, Khuong Trong Dinh, Yurixi Lopez-Miranda, and Rajat Agrawal
A Qualitative Phenomenological Study on the Perceived Impact of Health Literacy on Health Care Experiences among Haitian Immigrant Adults in the U.S.
Tanya Bouchette and Laurie Latvis
Interpreter Use, Code-Switching, and Patient Outcomes in U.S. Clinics: A Narrative Review for Graduate Medical Education
Ruth Ese Otaigboria, Kenneth Anaeto Nwankwo, Mishael Ifeanyi Nonyelum, Ayodele Blessing Ayo-ige, Aliaa Mohammed Soliman, and Tumoe Heni
Healthcare Provider Communication Training: The Influence of Training Participation on Engagement and Patient Experience
Amanda Woods Herron, Phoebe Hessen, Katelyn J. Cavanaugh, Reeni J. Luke, and Courtney L. Holladay
`Bridging the Gap': A Directed Content-Analysis Evaluating Regulatory Guidance for Education in Person Centred Care for Heatlhcare-Professional Students
Lindsay Harrison, Vivienne Byers, and Damon Berry
Health Justice Education to Enhance Overall Patient Experience in the Context of Acute-Care Hospitals
A Sivasubramaniam, C. Blanchard, S Pattabiraman, C Uzoh, and Y Khalid
Pilot Medical Student Greeters for Pediatric Cystic Fibrosis Patient-Centering
Katherine Schoeffler, Mulan Tang, Jennifer Dannelley, Nighat Mehdi, and Dee Wu
The Patient Voice in Rehabilitation: Experiences with High-Intensity Gait Training in a Student-Run Pro Bono Clinic
Amy M. Yorke, Emma Cleason, Drew Uhlmeyer, Sidney Kulhanek, Brookelyn Stafford, Tracy Koepplin, Leslie M. Smith, Suzanne Trojanowski, and Beverly Dabney
The Patient Experience Across the Care Continuum: Inpatient Rehabilitation, Discharge Preparedness, and Community Reintegration after Spinal Cord Injuries/Disorders
Sherri L. LaVela, Myrissa Le, Ibuola O. Kale, Ashley Craig, Jane Duff, Marcel Post, Sara Ahmed, and Allen W. Heinemann
Patient Experience with Insulin Pump Therapy and Health-Related Quality of Life in Adults with Type 1 Diabetes: A Cross-Sectional Survey
Miriam Cruz-Andina, Juan Pablo Hervás-Pérez, Raquel Moreno-Sánchez, Raquel Caballero de la Calle, Eduardo Cimadevilla Fernández-de Pola, Clara Lucas-Guerra, Carlos Ruíz-Núñez, and Ivan Herrera-Peco
Care Experiences of People with COPD during the COVID-19 Pandemic
Judith Kecskemeti, Mausam Vadakkayil, Benson Law, HengLiang Wu, Caitlin Carrigan, Rosa Nguyen, and Shannon L Sibbald
Use of Generative Artificial Intelligence for Development of Plain Language Summaries: A Blinded Assessment of Education Preferences of the UK Sickle Cell Disease Community
Oliver Shastri, Orlando Agrippa, Valerie Moss, Eleanor Millard, Lianne More, Eleanor Rose Brown, Seraj Sharif, and Chris Finch
Who is the Patient Trusting? A Scoping Review of Patient-Physician Trust in the Generative Artificial Intelligence (GenAI) Era
Ashleigh M. Allgood, Eugenia B. Yiadom, Michele L. Heath, and Geoffrey A. Silvera
Beyond Borders: A Comparative Analysis of the Patient Experience of Kazakh Citizens in Türkiye and Kazakhstan
Azhar Zhaiykkyzy and Harun Kırılmaz
Does System Structure Affect Organizational Application of PREMs: A Comparative Evaluation of 5 Countries
Heather Lee, J'Aime C Jennings, Logan R Marler, Raime Cendoma, and Amy Yarbrough Landry
The Global Experience Measure: A Common Ground for Experience Excellence
Jason A. Wolf, Brittany Lax, and Karen Walsh
Case Studies
Improving Patient Experience Scores Through Patient Experience Coaches: A Case Study
Maryann Bowersox, Patricia Coryea-Hafkey, Kristin Baird, Raime Cendoma, and Nancy Borkowski
Optimizing `People-Centred Care' Best Practices in a Multi-Site Community Hospital: A Case Study
Kimberly Johnston, Carla Arpa, Mary Jane McNally, Veronique Boscart, and Shalini Pattabiraman
A Dynamic Three-Stage Co-Design Process for Developing an Assessment Scale for Children with Neurodevelopmental Conditions
Syeda Ishra Azim, Christa Lam-Cassettari, Tsz Ying Wong, Ping-I Lin, Antonio Mendoza Diaz, Anne Masi, Kylie-Ann Mallitt, Alicia Montgomery, Catherine McHugh, Andrew Whitehouse, Mark R Dadds, and Valsamma Eapen
Advancing PFAC Initiatives, Effectiveness, and Visibility through Strategic Planning and Assessment
Aimee Williamson and Katherine Litterer
