Contrasting Patients' and Healthcare Professionals' Experience in Hematological Cancer Care Pathway: A Narrative Study

Authors

Karine Bilodeau, Université de Montréal, MontréalFollow
Cynthia Henriksen, Maisonneuve-Rosemont Hospital Research Center, MontréalFollow
Camilia Aloisio Alves, Petrópolis Medical College, Rio de JaneiroFollow
Charlotte Gélinas-Gagné, Maisonneuve-Rosemont Hospital Research Center, MontréalFollow
Lynda Piché, Centre hospitalier de l’Université de Montréal, MontréalFollow
Jacinthe Pepin, Faculty of Nursing, University of Montreal, MontréalFollow
Virginia Lee, McGill University Health Center, MontréalFollow
Marie-France Vachon, Centre hospitalier de l’Université de Montréal, MontréalFollow
Nathalie Folch, Centre hospitalier de l’Université de Montréal, MontréalFollow
Marie-Pascale Pomey, University of Montréal, MontréalFollow
Nicolas Fernandez, University of Montreal, MontréalFollow

ORCID

Karine Bilodeau: https://orcid.org/0000-0002-0705-3426

Camilia Aloisio Alves: https://orcid.org/0000-0002-3477-0367

Charlotte Gélinas-Gagné: https://orcid.org/0009-0003-2198-8732

Jacinthe Pepin: https://orcid.org/0000-0002-5480-2610

Virginia Lee: https://orcid.org/0000-0003-1386-5751

Nathalie Folch: https://orcid.org/0000-0002-2307-3849

Marie-Pascale Pomey: https://orcid.org/0000-0001-5180-8139

Nicolas Fernandez: https://orcid.org/0000-0002-3840-2641

Abstract

Hematological cancers represent 10% of cancers diagnosed in Canada. Treatments involve complex care pathways and various modalities as well as the management and monitoring of multiple side effects. There is limited understanding of these pathways from the perspectives of the people living with cancer (PLC) and the healthcare professional (HCP). The aim of this article is to contrast the experiences of PLCs and HCPs in the context of hematological cancer care pathway. Narrative study approach was chosen for this exploratory study. Twenty-one narratives were co-created with PLCs (n = 12) and HCPs (n = 9). A structural and comparative analysis of the narratives was performed. Results underline how PLCs' and HCPs' experiences were intertwined but not interdependent. PLCs seek to reconfigure their lives, while HCPs aim to individualize and enhance care for their patients. Furthermore, the shared experience between PLCs and HCPs proved beneficial for both groups. Ultimately, our findings underscore the need to access greater understanding into the dynamics of the relationship between PLCs and HCPs that could enhance quality of healthcare and services in the context of hematological cancer care.

Recommended Citation

Bilodeau K, Henriksen C, Aloisio Alves C, Gélinas-Gagné C, Piché L, Pepin J, Lee V, Vachon M, Folch N, Pomey M, Fernandez N. Contrasting Patients' and Healthcare Professionals' Experience in Hematological Cancer Care Pathway: A Narrative Study. Patient Experience Journal. 2025; 12(1):169-181. doi: 10.35680/2372-0247.1971.

Creative Commons License

This work is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 4.0 License.