Editorial
Commentaries
Measuring what matters: A proposal for reframing how we evaluate and improve experience in healthcare
Alpa Vyas, Lisa Allen, Anne Brown, Jennifer Carron, Cassandra Crowe-Jackson, Rick Evans, Kevin Gwin, and Jason A. Wolf
Current PROM and PREM use in health system performance measurement: Still a way to go
Claudia Bull and Emily J. Callander
Personal Narratives
Before it is over: A family’s experience with end-of-life care during COVID-related restrictive visitation policies
Andjela H. Kaur
Family’s sufferings from asymptomatic COVID: Clinicians’ perspective
Neha Joshi Dr, Jitender Nagpal Dr, and Anand Sinha Dr
Research
Assessment of the COVID-19 pandemic and its impact on a children's hospital: The point of view of patients and families
Maria D. Navarro-Rubio, Ana Bosque, Arian Tarbal, Paula Cañal, David Nadal, and Mercedes Jabalera
Understanding both sides of the blood draw: The experience of the pediatric patient and the phlebotomist
Julie R. Piazza, Sandra Merkel, Brooke Rothberg, Joan Gargaro, and Kristin Kullgren
The impact of patient-centered care on health outcomes in adolescents living with diabetes
Rashida Farhad Vasanwala Dr, Amos Lim, Lim Soo Ting, Lim Pei Kwee, Hui Yuen Ching, and Tan Xiang Feng
Patient and family engagement: Bridging together interprofessional practice and patient- and family-centred care
Yuchen Gao, Sylvia Abonyi, Pamela Downe, Krista Baerg, and Heather A. Ward
Adapting and responding to a pandemic: Patient and family advisory councils in children's hospitals during COVID-19
Pam Dardess, Deborah L. Dokken, Ndidi I. Unaka, Jesse Hsu, Mindy Hoang, Andrew F. Beck, and Beverley H. Johnson
Consumer experience of mental health services during the COVID-19 pandemic: Evidence from an Australian mental health system
Sarah Kelshaw, Jason Boyd, Irene Gallagher, and Grant Sara
An exploration of psychological trauma and positive adaptation in adults with congenital heart disease during the COVID-19 pandemic
Liza Morton Dr, Calum Calderwood, Nicola Cogan, Claire Murphy, Evan Nix, and Jacek Kolacz Dr
Understanding patient experiences before and during the COVID-19 pandemic: A quasi-experimental comparison of in-person and virtual cancer care
Linda Watson, Claire Link, Siwei Qi, Eclair Photitai, Lindsi Chmielewski, Diane Fode, and Andrea DeIure
Resource utilization among informal caregiver of lung cancer patients undergoing treatment
Charlotte T. Lee, Clarelle L. Gonsalves, Jenny Gao-Kang, Wyatt G. Pickrell, and Ruth F. Barker
Patient reported experience in a radiation oncology department
Demetra Yannitsos, Petra Grendarova, Abdulla Al-Rashdan, Linda Watson, Wendy Smith, Fiona Lochray, Jackson Wu, and Lisa Barbera
The quantitative assessment of patient satisfaction in the COVID-19 epidemic compared to the epidemic-free period
Vesna Zupančič and Ajda Rogelj
What are the sources of patient experience feedback in the UK prison setting, and what do patients and healthcare staff think about giving and receiving feedback in prison? A qualitative study
Frances Hankins, George Charlesworth, Philippa Hearty, Nat Wright, and Laura Sheard Dr
Development of an experienced quality measure for clients, informal and formal caregivers in home care in the Netherlands: A participatory action research
Roy Haex; Theresa Thoma-Lürken PhD; Anna J.H.M. Beurskens PhD; and Sandra M.G. Zwakhalen PhD, RN
Beyond HCAHPS: Analysis of patients’ comments provides an expanded view of their hospital experiences
Andrew S. Gallan, Rakesh Niraj, and Awanindra Singh
Patient involvement in the development of PROMs within the MS Field: A systematic review
Signe Baattrup Reitzel, Melinda Magyari, Lasse Skovgaard, and Maria Kristiansen
The use of patient experience data for quality improvement in hospitals: A scoping review
Lauren Cadel, Michelle Marcinow, Harprit Singh, and Kerry Kuluski
Case Studies
When healthcare leadership and philanthropy lead to an improved patient experience: The Paul Lepsoe Music Initiative
Sara Olivier RN BScN MN; Corianne Bell BA Mus; Cheryl Jones Registered Psychotherapist, MTA, PhD; and Jerry M. Maniate MD, M.Ed, FRCPC, FACP
Positively waiting: Technology as the preferred distractor in a pediatric outpatient setting
Timothy Ernest, Victoria Maddex, Arnaldo Mejias, Lindy Davidson, and Donna Ettel-Gambino
From liability to asset: A large health system’s approach to transforming hospital food
Sven Gierlinger, Bruno Tison, and Nicole Giammarinaro
Virtual cardiac rehabilitation: A rapid shift in care delivery in response to the COVID-19 Pandemic
Clare Koning, Brigitte Friesen, Justin Daigle, and Anita Ytsma
Showcasing patient and public involvement: Using consultation, collaboration and co-design to shape a respiratory programme
Kate Strong, Elizabeth Williams, and Jude Hancock Dr
Engaging patients and families in developing, implementing, and evaluating hospital at home: A Canadian case study
Sean P. Spina BSc(Pharm), ACPR, PharmD, FCSHP; Taylor Hainstock BHSc, MA; Rounak Haddadi BSc, BHSc; Beth Bourke BScN, RN; Lisa Thompson BSc; Elizabeth Borycki RN PhD FACMI, FCAHS, FIAHSI; Jennifer Cartwright; David Forbes BSc(Pharm), MPA, ACPR, BCPS, CTE; Curtis K. Harder BSc(Pharm), ACPR, PharmD, FCSHP; Andre Kushniruk PhD, FACMI, FCAHS, FIAHSI; Tasha Mckelvey BScN, MHA, RN; Tara McMillan BSc; Stephanie Menz BSc, BSP, ACPR; Katy Mukai BA, MPA; Michelle Riddle; Shauna Tierney MD, CCFP; and Melinda Zeron Mullins MD, PhD, CCFP
