Post-Pandemic Needs of Unpaid Family and Friend Caregivers to Effectively Continue Caregiving Duties in one Northern Ontario Health Authority

Jodi Webber, School of Social Work, Algoma University, Sault Ste. Marie, ON, CanadaFollow
Erin Mulroney, Algoma Ontario Health Team, Sault Ste. Marie, ON, CanadaFollow
Mark Tatasciore, School of Social Work, Algoma University, Sault Ste. Marie, ON, CanadaFollow
Brianna Smith, Algoma Ontario Health Team, Sault Ste. Marie, ON, CanadaFollow
Patti-Jo Duggan, Algoma District Community Caregiver and Patient and Family Advisory Council Member, Sault Area Hospital, Sault Ste. Marie, ON, CanadaFollow
Louis Ferron, Algoma District Community Caregiver and Patient and Family Advisory Council Member, Sault Area Hospital, Sault Ste. Marie, ON, CanadaFollow
Hannah Albani, Ontario Caregiver Organization, Toronto, ON, CanadaFollow
Bianca Feitelberg, Ontario Caregiver Organization, Toronto, ON, CanadaFollow
Laura Tenhagen, Sault Area Hospital, Sault Ste. Marie, ON, CanadaFollow
Sophia Myles, School of Kinesiology and Health Sciences, Laurentian University, Sudbury, ON, CanadaFollow

Abstract

The Covid-19 pandemic had a significant impact on the support networks for older adults and caregivers as health and social care systems were forced to dramatically change the ways patients and clients interacted with providers, services, and programs. In Northern Ontario, caregivers are older, caring in more intense situations, more likely to be caring for multiple care recipients simultaneously and less likely to be in contact with health professionals. This research sought to explore the post-pandemic needs of caregivers in a Northern Ontario health catchment to better understand the needed supports. Using a collaborative and co-design approach with caregiver advisors within a qualitative description design, seven focus groups were conducted with 36 participants in total in February 2023. Reflexive thematic analysis was used to generate five themes from the transcripts: caregivers as the invisible but vital backbone of health and social care; amplified distress: navigating overwhelming demands; family fault lines exposed; contextualized care: the need for personalized supports; and empowering caregivers through training and supports. Our findings suggest that the pandemic significantly impacted the already vulnerable support networks for older adults and caregivers, as health and social care systems had to adapt to new restrictions and limitations. Caregivers were forced to take on additional responsibilities and cope with social isolation, leading to detrimental effects on their mental health and overall well-being.

Recommended Citation

Webber J, Mulroney E, Tatasciore M, Smith B, Duggan P, Ferron L, Albani H, Feitelberg B, Tenhagen L, Myles S. Post-Pandemic Needs of Unpaid Family and Friend Caregivers to Effectively Continue Caregiving Duties in one Northern Ontario Health Authority. Patient Experience Journal. 2024; 11(3):106-116. doi: 10.35680/2372-0247.1918.