Patient & Family Experience in Children’s Hospitals and Pediatric Care
Editorial
Lessons for patient experience from the voices of pediatrics and children’s hospitals
Jason A. Wolf PhD, CPXP
Commentary
Partners for excellence: Committed to meaningful partnerships with patients and families in pediatrics
Rachel Biblow, MSW and Sara Toomey MD, MPhil, MPH, MSc
Personal Narratives
Life with my baby in a neonatal intensive care unit: Embracing the Family Integrated Care model
Yasmin Lalani
Breaking bad news and the importance of compassionate palliative care of the infant
William S. Sessions II, Sean Y. Kow, Elizabeth Waldrop, Kayle Stevenson, Ayo Olanrewaju, Thu Tran, and Mubariz Naqvi
Tertiary care centres must do more for patients with unknown conditions: Lessons learned from a child
Guido Filler and Lana Rothfels
Research
Caring moments within an interprofessional healthcare team: Children and adolescent perspectives
Amélia Didier, David Gachoud, Gabriela von Niederhäusern, Lazare Benaroyo, and Maya Zumstein-Shaha
The pediatric emergency department care experience: A quality measure
Terri L. Byczkowski, Kimberly A. Downing, Michael R. FitzGerald, Stephanie S. Kennebeck, Gordon L. Gillespie, and Evaline A. Alessandrini
What constitutes the patient experience of children? Findings from the photo elicitation and the video diary study
Nina Karisalmi, Hanna Stenhammar, and Johanna Kaipio
Can an interactive application be used to collect meaningful feedback from paediatric patients and their parents in a hospital setting?
Janelle O'Neill, Graham R. Reeks, and Lauren Kearney
Case Studies
Partnering with pediatric patients and families in high reliability to identify and reduce preventable safety events
Julie Kirby, Courtney Cannon, Lynn Darrah, and Yolanda Milliman-Richard
Integrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: A family-centered approach
Sarah K. Featherston, Beatriz N. Rozo, Danielle A. Buzanga, Alexandra M. Garcia, Joanne Greene, Laura K. Salvador, and Joan O'Hanlon-Curry
Family Experience Tracers: Patient Family Advisor led interviews generating detailed qualitative feedback to influence performance improvement
Kathryn Taff, Sheryl Chadwick, and DeeJo Miller
Wait time reality check: The convergence of process, perception, and expectation
Marian Hill, Lorianne Classen, Andrea Romay, and Erika Diaz
Condition Help: 10 years of experience enhancing our culture of family engagement
Andrew McCormick, Catherine Polak, Michael Fox, Michele Carlson, Charles Guthrie, Michael Decker, Diane Hupp, Gabriella Butler, and Andrew Urbach
