Reexamining “Defining Patient Experience”: The human experience in healthcare

Jason A. Wolf, The Beryl Institute / Patient Experience JournalFollow
Victoria Niederhauser, The University of Tennessee Knoxville, College of NursingFollow
Dianne Marshburn, East Carolina University College of NursingFollow
Sherri L. LaVela, Department of Veterans Affairs (VA), Center of Innovation for Complex Chronic Care (CINCCH), Health Services Research, Edward Hines Jr. VA Hospital; Department of Physical Medicine and Rehabilitation, Feinberg School of Medicine, Northwestern University Follow

Abstract

In 2014, the authors came together with the explicit purpose of understanding how people were defining patient experience.¹ Our broad review and analysis of the literature led us to a few critical points. One, as our review showed, there was an absence of a commonly used definition around patient experience in healthcare. Two, while consistency in the use of one definition was not revealed, there was great alignment around central components seen as critical to patient experience. Three, we highlighted the recurrence of key concepts from the literature that are also found in the definition offered by The Beryl Institute that include: ‘sum of all interactions,’ ‘the influence of organizational culture,’ ‘patient perceptions,’ and the importance of considering experiences ‘across the continuum of care.’ While this initial inquiry took place seven years ago, we would suggest that these core definitional concepts are no less relevant today and, in fact, may have grown in significance, as those in healthcare have come to better understand the scope and scale of experience. Hence, the purpose of this paper is to assess how the definition has evolved to encompass novel and timely viewpoints that complement the original definition and understand how - and in what ways - the definition has advanced. The definition of patient experience was a significant milestone. It provided simple language for the truly complex nature of what patient experience is and has ultimately served as a foundation for framing the human experience in healthcare. The human experience in healthcare integrates the sum of all interactions, every encounter among patients, families and care partners and the healthcare workforce. It is driven by the culture of healthcare organizations and systems that work tirelessly to support a healthcare ecosystem that operates within the breadth of the care continuum into the communities they serve and the ever-changing environmental landscapes in which they are situated. The human experience in healthcare ultimately is the fruit born from the core of patient experience itself.

Experience Framework

This article is associated with the Culture & Leadership lens of The Beryl Institute Experience Framework (https://www.theberylinstitute.org/ExperienceFramework).

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Recommended Citation

Wolf JA, Niederhauser V, Marshburn D, LaVela SL. Reexamining “Defining Patient Experience”: The human experience in healthcare. Patient Experience Journal. 2021; 8(1):16-29. doi: 10.35680/2372-0247.1594.