The Impact of Inequity & Health Disparities on the Human Experience
Editorial
Moving from talk to action: A commitment to ensuring equity must ground our efforts to transform the human experience
Jason A. Wolf PhD
Commentaries
“I See What You Do”: A patient’s view of equity
Nikki (Charisse) Montgomery
His Story: “I would be better off dead”
Ronald Wyatt MD
Breaking barriers to equity: A conversation with Dr. Julia Iyasere
Jason A. Wolf PhD
Personal Narrative
A patient’s narrative of engaging HIV care: Lessons learned to harness resources and improve access to care
David Lessard, Serge Vicente, Patrick Keeler, and Bertrand Lebouché
Research
Sociodemographic characteristics and patient and family experience survey response biases
Lauren N. Brinkman, Myra S. Saeed, Andrew F. Beck, Michael C. Ponti-Zins, Ndidi I. Unaka, Mary C. Burkhardt, Jareen Meinzen-Derr, and Samuel P. Hanke
Traversing barriers to health care among LGBTQ+ Latinx emerging adults: Utilizing patient experiences to model access
Rachel M. Schmitz and Jennifer Tabler
Measuring cancer care experiences of Aboriginal and Torres Strait Islander people in Australia: Trial of a new approach that privileges patient voices
Monica Green, Joan Cunningham, Kate Anderson, Kalinda Griffiths, and Gail Garvey
The Right PREMTM: Rasch analysis of a new patient reported experience measure for use by older people in hospital
Louise Heuzenroeder, Jyoti Khadka, and Alison Kitson
The experience, satisfaction, and Emergency Department utilization of pediatric patients with sickle cell disease during the Covid-19 pandemic
Alexandra E. Kirsch and Nataly Apollonsky
Case Studies
Building patient participation in quality of care through the healthcare stories project: A demonstration program in New York State HIV clinics
Abigail Baim-Lance, Freda Coren, Margaret Brown, Hazel Lever, Daniel Tietz, and Bruce Agins
Health equity and quantifying the patient experience: A case study
Maria R. Moreno, Brandon Sherrets, Danielle J. Roberts, and Kristen Azar